Posts Tagged ‘kidney disease’

Blog 6/3/11 (day 37)

Well tomorrow I start the 6-8 month taper off of prednisone.  After five weeks at 80 mgs, I will go down to 70 mgs of prednisone per day.

In general the longer the taper, the longer the remission from the kidney disease.  Last time I was on 80 mgs for two months and then tapered off for 5 months.  My nephrologist thinks that may have caused the kidney disease to come back too soon.  That means I will probably be looking at being on prednisone for 8-9 months this time.

Today I walked 3 miles before breakfast, went for an alternative medicine visit, and later worked out at the gym.

For physical therapy, I had micro-current on the torn chest muscle, and did 10 minutes on the whole body vibration plate.

At the gym, I did an abdominal workout and did a 45 minute interval training on the treadmill.



Blog 5/1/11 (day 4)

It looks like I may have waited too long to go on the prednisone therapy.

I seem to be battling swelling in the legs and ankles more now that before I went on prednisone.  I am guessing this is due to not get the nephrotic syndrome/kidney disease back in remission soon enough.  I expect the prednisone will get rid of the minor fluid retention I have now when it gets me out of nephrotic syndrome.

Since I am on a very low sodium diet, the fluid retention is no enough to stop me from doing anything.  Just more of a nuisance at this point.

Of course after I minimize the fluid retention, the prednisone will then redistribute fat and make my face, neck, and abdomen swell up (moon face/cushing’s syndrome).  This should not get real noticeable until about 2-3 months from now.

Today I got to walk 2.5 miles before breakfast and then workout at the gym 4 hours after taking the 80 mgs of prednisone.  It was more of a resting day than anything because tomorrow is my very last time I will push my luck with bench pressing a maximum.

It is only day 4, and I already have adjustments to make.  I need to determine the best time of day to workout (after taking the prednisone).  Right now it seems like I will try to workout 2-4 hours after the prednisone.

Now matter what time I day I have chosen so far, I find I already have to push myself through the workout.  If I stay focused and don’t give up I get a kind of second wind.  Eventually it will get more and more difficult to workout on prednisone.

However, I do not get the rush (speeding/caffeine feeling) that most people get.  I just get extremely sensitive to caffeine.


Blog 4/26/11

Today I went for more lab tests.  The results from these tests will determine if I start the 80 mgs of prednisone on Friday.

If by some miracle the complimentary alternative medicine (CAM) helped fix my kidneys then I will be able delay going back on prednisone.  From the CAM I am mainly using the acupuncture to help heal the kidneys.  This might sound crazy but acupuncture has been around for thousands of years.

Since I am planning on hiking Old Rag Mountain tomorrow, I did an easy workout today.  I focused on the back and arms today.  I would have done a leg workout but I did not want to press my luck before doing a four hour hike tomorrow.

At this point I feel that either the chiropractic adjustments, and acupuncture is helping or else my diet and exercise has been good enough to minimize the fluid retention.  When I was in nephrotic syndrome in 2008, I gained 20 lbs of fluid.  This time I gained 5-10 lbs and took off 5 of those pounds.  Maybe it is because of the extreme low sodium diet and exercise or maybe the CAM is working.

Tomorrow is a big day.


About Prednisone

Prednisone is in a class of drugs called corticosteroids.  Corticosteroids are powerful anti-inflammatory drugs that are commonly used for many medical conditions.  Prednisone is a prescription medicine and can be used to prevent leakage of material in the body that causes inflammation.

Unlike the natural steroids (glucocorticoids) our adrenal glands make, prednisone is a synthetic corticosteroid. Since prednisone is an immunosuppressant drug it is prescribed for many conditions such as immune disorders, eye problems, blood disorders, some types of arthritis, severe allergic reactions, multiple sclerosis, lupus, and certain conditions that affect the lungs, skin, eyes, thyroid, stomach, and intestines, e.g., Crohn’s disease. Prednisone is even used to treat the symptoms of certain types of cancer.

At high doses, prednisone is use to treat inflammatory diseases, such as kidney disease.  Two kidney diseases prednisone is prescribed for are Focal Segmental Glomerulosclerosis (FSGS), and Minimal Change disease.  These kidney diseases are known to cause nephrotic syndrome.

Although corticosteroids such as prednisone are very effective in reducing inflammation, they can also cause many adverse side effects.

Some of the side effects that you can experience include severe muscle atrophy, massive weight gain, osteoporosis, osteonecrosis (death of bone), avascular necrosis (AVN), bone loss, cataracts, thinning of the skin, stomach ulcers, depression, mood swings, inflammation of the pancreas, moon face, slow healing of wounds, sleep problems, increased sweating, dizziness, and/or diabetes.

If you see any signs of symptoms of these side effects you should immediately inform your doctor.

It is better take the medication at the same time every day.  If you miss a dose you can take the medicine as soon as you remember but this may change your routine and energy level.  You never want to increase or decrease the dose of this medication on you own.  As with any medication, you should always consult your personal doctor with any specific questions because only your doctor knows the details of your medical profile.

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